My Lyme Story: From Infection to Remission and Beyond!

Hey Love Bees! ๐Ÿ

There was a time in my life when I didnโ€™t know whether Iโ€™d ever be able to walk again.

Lyme Disease Tick

It all started with a tick bite, followed by the development of a rash which resembled a bullseye.  

I didnโ€™t think anything of it at the time, but soon afterwards my eyesight deteriorated suddenly. Then, I started getting chest pains and cardiac arrhythmia, and found myself blacking out.

I also developed a gnawing pain in my knees, which gradually worsened and spread to every joint in my body. 

For years afterwards, I suffered from the most excruciating and unrelenting joint pain; coupled with extreme fatigue, cognitive impairment and worsening neurological symptoms.

By this point, I was bed-ridden and being cared for by my mum. Iโ€™d lost all of my independence, most of my dignity, and I was beginning to lose all hope.๐Ÿ˜ข

Eventually (after being misdiagnosed with Fibromyalgia and CFS by the NHS) I was tested privately (using more accurate testing methods) and I finally discovered that I was actually suffering from Lyme Disease!

If not treated immediately, Lyme Disease can become a stubborn, serious and progressive infection which can encyst and hide from the immune system. It can cause permanent damage to the heart and brain, and evidence suggests that chronic infection may be linked with the development of MS.

By this point, I’d been sick (and untreated) for many years, and I was terrified about what my future might hold! 

Thankfully, I adopted a vegan lifestyle and to my complete surprise, within a week of switching to a whole foods plant-based diet, my Lyme Arthritis showed signs of improvement and my chronic pain started to subside!

This had a huge impact on my quality of life, and is something Iโ€™ll always be grateful for! ๐Ÿ’œ

Later, I also underwent a gruelling herbal protocol (called the Buhner Protocol) followed by CQ10 supplementation, which improved my other symptoms too – and eventually, I went into remission.

Every day now, I’m so overcome with gratitude and joy for regaining my life and my health, and I hope that my experience might give those suffering from this dreadful disease, a tiny bit of hope!

Chronic Lyme Disease

I also hope that my story can help to remind people to be aware of the dangers of ticks.

If youโ€™re in the countryside, please try to cover up as best as possible, and be sure to remove any ticks correctly. Also, if you do get bitten (even if you donโ€™t have a bullseye rash) please seek medical treatment immediately.

I’d also recommend watching the eye-opening documentary Under Our Skin as it truly shows the scale and impact of Lyme Disease. (I believe you can find it on Youtube!) 

So what’s life like for me now? Well, after gradually building up my fitness, I’ve recently taken up running!! I was hugely inspired by the incredible running scene in Budapest, and I cannot describe how amazing it feels to be flying down the road – knowing how far Iโ€™ve come! ๐Ÿ‘Œ๐Ÿป

Whatโ€™s even better is that I can use my new hobby to help raise money for charity – So on the 24th September, Iโ€™ll be doing my first 10k race to raise money for Animal Free Research UK!

If youโ€™d like to know more or want to sponsor me, you can find my JustGiving page here.

Every penny truly does help, and it would mean more than words can say! ๐Ÿ’œ

Also, if youโ€™d like more info on my healing journey or Lyme Disease, please donโ€™t hesitate to contact me and I’ll do my very best to help!

Much love and take care,

Chrissy xx

45 Comments

45 Comments on My Lyme Story: From Infection to Remission and Beyond!

  1. You have overcome so much and are an inspiration to anyone struggling with illness. i greatly admire your positivity! I am so pleased that now you are running , your new hobby ! This is all the more fantastic as you were confined to a wheelchair ! Well done ! I am so proud of you !!!! xxx

  2. Emma Raphael says:

    That’s fantastic that changing your diet changed your life… Lymes disease just fills me with dread. We used to live in an area that had a very high tick problem (Bavaria), which meant that I would check my children thoroughly each time they came home from school. There we could get the vaccine for Tick Borne Encephalitis, but we just had to be super vigilant and watch out for a bulls eye rash…

    • Oh Gosh..Bavaria looks like such a beautiful area but that must have been SO scary! ๐Ÿ™ I was bitten in the New Forest, which is one of the worst places in the UK for Lyme-infected ticks!xx

  3. Sarah Bailey says:

    Oh wow you have come through so much, I hope your Lymes is now in remission for good. Good luck with your running as well that is amazing.

  4. myrabevlife says:

    What an incredible journey and thankfully you had those private tests because misdiagnosis is so common these days. Thanks for sharing your story.

    • Oh gosh! Yes, I’m SO grateful that I had them done! For years I thought it was ME/CFS and I just kept getting worse and worse..it makes me sad to think of all the other people out there who’ve been misdiagnosed and just don’t know! ๐Ÿ™ xxx

  5. That’s an amazing journey, and so wonderful that your vegan diet helped you into remission, it’s incredible what plants can do! ๐Ÿ™‚ Best of luck with your run, enjoy it!

  6. Oh my goodness – you have overcome so, so much! You’re amazing!

  7. Goodness me! How terrifying for you. I never knew about this and how bad it could get – so thank you for highlighting it. I take my dog on country walks and never thought something like this could actually happen. x

    • Yeah, it’s really scary how a creature so small can cause so much damage! I’d love to see more awareness about it, to help people realise the dangers and also help those who are already infected, to start getting treatment sooner.xx

  8. Oh wow what an incredible story and a terrifying experience to have gone through. I’ve noticed that Lyme disease is up on the rising lately, I remember hearing a piece about it on the radio. I know you have to look out for a bullseye rash.

    • Yes! It definitely seems to be getting more prevalent ๐Ÿ™ John Caudwell (the billionaire founder of Phones4U) has done a lot to raise awareness of it recently, as his whole family has it! Although some people with Lyme don’t get the rash, most do, so I think if people are able to recognise it and get treatment early, that will be a huge step forward in preventing it from becoming such a chronic and debilitating illness.xx

  9. Emily (@amummytoo) says:

    Having had viral meningitis last year some of this was painfully relatable. Awful that it took so long for you to be correctly diagnosed, but so happy to hear how well you’re doing now x

    • Oh gosh! I’m SO sorry to hear you had viral meningitis..that must have been SO terrifying and awful! I hope you’re doing much better now, and thank you so much for your kind words! *hugs*xx

  10. It sounds like you’ve been through the mill but come out the other side stronger. It’s amazing how a diet can make you feel much better! Good luck on the run x

  11. Omg how scary! Thank goodness you got treatment you needed! It’s so scary that a bite can make you so poorly!!

  12. You have overcome so much and you really are an inspiration!

  13. WOW. I can’t believe how bad you’ve had it. I had no idea it could develop like this, poor you. Thank you so much for sharing, what an important message to get out there.

  14. Jess says:

    Ticks terrify me. I’m a bit obsessive when my fella and I go walking. I can’t believe how lucky you’ve been after the misdiagnosis, despite that I don’t doubt that what you’ve been through is truly awful. So glad you’re using your platform to raise awareness.

    • Thank you! ๐Ÿ™‚ Yeah, I really am SO lucky – I never thought I’d be well again, and my heart breaks for all those with Lyme who don’t respond to treatments. ๐Ÿ™ Prevention is definitely so important! <3 xxx

  15. Such an inspiring story, I’m so happy you’re now in remission and well done for raising awareness ๐Ÿ™‚

  16. Emma White says:

    oh wow how brave and inspiring yet this is so scary – I do live in the countryside and the dog has had one of two attached to him, thankfully the vet is only around the corner but never thought about myself or the children come to that

  17. WOW what an inspiring woman you are! I honestly didn’t know Lyme disease was as serious as this! My cat came home with three ticks recently and I had to get them removed. I am glad to see that you are recovering and taking on amazing challenges! You must be very proud of yourself xx

    • Aw, thank you so much, that’s very sweet of you to say! <3 Yeah, it's scary how much damage Lyme disease can do - I'm definitely one of the lucky ones to recover as much as I have! <3 xx

  18. Ashleigh says:

    Such a scary thing to experience! Can’t imagine what you was feeling. So glad you are feeling better now!

  19. You have been through so much and you are so strong! I appreciate you sharing your life!

  20. Sarah Ann says:

    You’ve been through so much and should be so proud of yourself. I totally believe in the power of changing your health and lifestyle, which has done wonders for my health too.

    • Yay! I’m SO happy to hear that! <3 Yeah, it's funny because in many ways I'm fitter now than before I got sick (I could never have run a 10k before!). I'm so grateful that I made the decision to change my diet and lifestyle! <3 xxx

  21. Kira says:

    It’s really great that you’re open and you’re sharing your story to spread awareness!

  22. Sarah says:

    Oh my gosh, you are so inspirational – but this is really scary!! Ticks really freak me out. GO YOU though!

  23. I can’t believe it took so long for them to diagnose you! Very happy a plant based life has helped you to feel better.

    • Thank you! <3 Yeah, it makes me scared for all the other people out there who are misdiagnosed or still waiting for a diagnosis (not just with Lyme disease, but across the board!) xxx

2Pingbacks & Trackbacks on My Lyme Story: From Infection to Remission and Beyond!

  1. […] my last post I talked a little about my new-found love of running, as well as my upcoming 10k race to raise […]

  2. […] When the race began I was so overwhelmed with emotion, as memories flooded back, from all the years that I was confined to a wheelchair and bed-bound with chronic Lyme Disease.  […]

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